Sarcoidosis Brain

I am a female one of 34 years with this condition &the amplifier; all that my doctor tried failed in to obtain it in order. Currently I am on oxygen 24/7 and I have a machine of CPAP with the oxygen to the duty in the evening to sleep apnea. Unfortunately, I have also seizures, fibromyalgia, the arthritis of rheumatiod, the lupus, the depression, the disorder of panic/anxiety, I have also 4 places on the in front of of my brain as my doctor does not know as the this is. I know that sarcoids can spread itself to the other organs but to the other doctor says that there generally remains at his place? Nevertheless, I had the vision loss in my just eye, my pcp verified my eyes and I could read only a letter on the second line. Can Sarcoids affects my eyes now. I am frightened. My lung doctor dismissed me as a patient because of the this declaration: I mets't knows if I can help you, more probably you had this disease for more than 10 years and the other doctors it allows goes just. If in of other terms it didn't need to be sunk in the middle. The expectation on the date back to inability court excuse agoMy of years of Details4 Additional for not enumerating my medicines.
Tylox for the pain
Demerol for the pain
The piece of Duragesic for the pain
Keppra for the seizures
Flexiril for Fibromyalgia
Zanaflex for Fibromyalgia
Prednisone for Sarcoidosis &the amplifier; the Lupus
Phenegran for the airsick
Celexa for the Depression
xanax for the disorder of terrify/anxiety
methotrexate for Sarcoidosis &the amplifier; the Lupus
The w/oxygen of CPAP for sleeps apnea
The oxygen for Sarcoidosis &the amplifier; P. Hypertention
And I am currently on a heart &the amplifier; the diabetes system. And I mets't has the diabetes (unless they said me just nevertheless) "sigh"4 years agoCarla, thank you for all the sites internet, they will be serviables &the amplifier; I will send to you by e-mail because I have questions that you can be able to help me with.

Canajoh, my husband &the amplifier; I feel the same manner. We question the sarcoids. I already had a second opinion that returned not very conclusive for sarcoids but they always said that the it was sarcoids. This is my health that they play with. By the way, my doctor takes disposals for me to go to the Hospital etables-juif in the St. Louis, MO. but they were reserved in top. Sad to say.

Thanks to all for your support.

4 years agoMy the excuse for not enumerating my medicines.
Tylox for the pain
Demerol for the pain
The piece of Duragesic for the pain
Keppra for the seizures
Flexiril for Fibromyalgia
Zanaflex for Fibromyalgia
Prednisone for Sarcoidosis &the amplifier; the Lupus
Phenegran for the airsick
Celexa for the Depression
xanax for the disorder of terrify/anxiety
methotrexate for Sarcoidosis &the amplifier; the Lupus
The w/oxygen of CPAP for sleeps apnea
The oxygen for Sarcoidosis &the amplifier; P. Hypertention
And I am currently on a heart &the amplifier; the diabetes system. And I mets't has the diabetes (unless they said me just nevertheless) "sigh"4 years agoCarla, thank you for all the sites internet, they will be serviables &the amplifier; I will send to you by e-mail because I have questions that you can be able to help me with.

Canajoh, my husband &the amplifier; I feel the same manner. We question the sarcoids. I already had a second opinion that returned not very conclusive for sarcoids but they always said that the it was sarcoids. This is my health that they play with. By the way, my doctor takes disposals for me to go to the Hospital etables-juif in the St. Louis, MO. but they were reserved in top. Sad to say.

Thanks to all for your support.

4 years agoCarla, thank you for all the sites internet, they will be serviables &the amplifier; I will send to you by e-mail because I have questions that you can be able to help me with.

Canajoh, my husband &the amplifier; I feel the same manner. We question the sarcoids. I already had a second opinion that returned not very conclusive for sarcoids but they always said that the it was sarcoids. This is my health that they play with. By the way, my doctor takes disposals for me to go to the Hospital etables-juif in the St. Louis, MO. but they were reserved in top. Sad to say.

Thanks to all for your support.

wo! reading your question, I can feel almost the pain -- hard qui's. all that I know this is the reason why vous're having the lung hypertension is because vous're having problems of the lung qui's why vous're on oxygen and cpap. but the remainder? not really in my sector of expertise but seems of your stems of problems of the disorders neuromusculaires. and now Does in your brain to which your NOT IMPORT what? tries looking for the second opinion -- you to say the truth, if I was the doctor and you have all these conditions -- the it is hard and I wouldn't knows where to begin.

I think that they should have tests do to see you where the root of all problems originates and tries to repair that and working slowly in outside to the other difficult sectors also. the thing more important is to discover where it all originated and pleasure that. because im guessing the symptoms vous're to obtain is now secondary effects of that " the root problem"

Deeply sorrowfull for your boredoms. You did not mention prescribed medicines, do you take prednisone? The symptoms describe you the sound as maybe your medicines can work to the angry ends, you need to be very clear with your documents of every one produces chemical that you ingest. They have gagned't calls the cops on you, but if you smoke a doobie to appease your airsick, it will affect the prescribed steroids for the lupus. You must approach every Dr. with a picture completes, but then to allow them to put the pieces together. Then to go to another Dr, and to allow for him to do the same rotten thing. They are people also, with the variable levels of competence and of motivations. This is your life nous're discusses, therefore you should fight for him. Did you look for additional the news of the American medical Assocation for your prescribed conditions? You has thouroughly prepared all your medicines? Without forgetting, not to forget system importance. To eat for health is an excellent resource for the lupus and sarcoidosis, as it enumerates the various vitamins that the assistance and worsens your various conditions. And that last doesn of solid dedclaration't as a dismissal, it seems as has you just need on duty to push for the solutions. Person will try to do your healthier life but you, and as all of other in this old big world, sadly, you have the fight for him.

Good day Patty,
Please to contact the American medical Assocation and obtain a reference to a big doctor that treats the multiple conditions that you have. I the strong sais's for not having you a system of support and a doctor to speak with according to all the multiple symptoms that you test.

http://www.healthgrades.com/consumer/ind...

Http: //www.ama-assn.org/

You truly have need of a wonderful and competent doctor that cares for of you as a patient. These sources will help you the one finds. If you did not always satisfy with their references, call the County corporation medical in your city to obtain a reference of wondeful base on your needs.

I would recommend does you it to follow to try to diminish the effects of apnea of sleep on your health. Slim (if you can) even only 5-10 books can improve strong the apnea of sleep. Try to exercise alittle everyday. Even if it means joining the gallery walkers bargains over and is with of others some hours a day. You need the people around you that cares for and has also the health problems that can be a support system for you. Of course, consult your doctor before to begin any program of system or exercise! !

For the news read these:
http://www.clevelandclinic.org/health/he...
http://www.americanheart.org/presenter.j...

Join a support group to your local hospital (calls the Respiratory Department or the Local Red Cross or Heart Association American) they will have lists and the people to call to obtain some support and some direction by your need time.

You can call local optomitrist and have an eye examination. When you call say that the your worries and a lot liberate the examination screens. That can help you strong of the worries that you have as for your eye view. Assure to take itself a list of all your conditions and medical precriptions to allow for them really you to help. You always should carry a such lists on you, in case of an urgency. Allergies, the medicines and disagnosis (the date) and the quantity of medicines should be daily incluse in the list.

I know this hasn't all was I wish that I could do, but I help it you helps.

To send to me by e-mail if you want just someone to speak with:)) The source (the sources) : http://www.healthgrades.com/consumer/ind...
Http: //www.ama-assn.org/
http://www.clevelandclinic.org/health/he...
http://www.americanheart.org/presenter.j...
Sleep the practicien/educator 20 years

Good day
Thank you for your suggestion to try the aloa vera takes forms, to this point je'll tries does not import what, I have also the major depression for which I take prozac, I take oxycodone and tramadol for the pain, zanaflex for the muscle spasmes, I take Remaron for sleep (doesn' t work very well), I have also the disorder of panic for which I take Ativan. Does the Demerol work well for you? I know someone of other that it uses for the pain and it seems to work well for him. This one of the few analgesics I refuge't tried. If moved away the oxycodone was the better one.

I if am grieved

I can sympathize to you. After a lung biopsy to Mount SinaaŻ in NYC, the diagnosis was Sarcoidosis. Yes, it can affect any organ, but rule of ordinary one in the lungs. I was on oxygen the whole time, also Prednisone that has a lot of bad sides affects: the cataracts, the thin skin, the bone loss, accelerates the ageing, and more. A year later I went to Medical Yale to see so maybe I had the lung fibrosis. They did not say fibrosis, and no Sarcoid or, and that the biopsy falls insufficiently were varied. A year a Clinic of later Mayo said it same thing, more than my condition of valve of heart of the sharp articular rhumatisme was harsh, not soft as my local Cardiologist said me for a lot of years. Also the pressure on my lungs was high. Yale and Mayo said that I probably has Bronchiolitis. The same by presbyterian NY where I went for the evaluation of transplantation. The arthritis of Sarcoid and R. the two are autoimmune diseases, I think that Lupus and Fibromyalgia is also. I can understand really your depression and your anxiety. Certain of your problem of the lung can be because of your heart. My valve was widened with ball angiogram, and I improved noticeably in two years. My point is, has any of your doctors evaluated your heart? An Echocardiogramme shows a lot of his function and valves. You could want to consider even the Clinic of Mayo. When I have entered July 2004 the cost including the test procedures was $7,300 and my assurance paid more for second. the second opinion. The advantage there is the hotel and the car housing. The better hospital for the lungs is Jewish Denver. I wish you well. Please to keep the fight! The source (the sources) : Personal experience.

Good day to have you were at a LUNG specialist of HYPERTENSION.
My mother-in-law has PH and is on Flonan examines the site internet of foundation of PPH Http: //www.pphcure.org It has the good information